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Marked differences in practice exist between cancer registries, for example, with respect to data sources, definitions and processing methods.To make cancer registry data comparable, which is one of the main aims of the Network, it is important that common rules and definitions are used. Working Groups have been established to examine specific topics, identified as potentially problematic. These expert working groups are constituted of 3-4 people, selected by the ENCR Steering Committee. Their task is to study the problem and make recommendations for the cancer registries.The following topics have already been discussed: |
| Working Groups |
| Topics | Authors | PDF link | Date |
|
Standard dataset |
|
English |
10 February 2005 |
|
Incidence Date |
Dr Derek Pheby, UK Dr Carmen Martínez, Spain Dr Martine Roumagnac, France Dr Leo Schouten, The Netherlands |
English French German Spanish |
Distributed in 1995 Revised in 1997 |
|
Multiple Primaries |
from ENCR: Dr Paule-Marie Carli, France Dr Isabel Izarzugaza, Spain Dr Beata Koscianska, Poland |
English |
Distributed in 1995 Revised in 2000 Revised in 2004 |
|
Bladder Tumours |
Dr Derek Pheby, UK Dr Martine Sauvage, France Dr Carmen Martínez, Spain Dr Leo Schouten, The Netherlands |
English French German Spanish |
Distributed in 1995 |
|
Tumours of the Brain and Central Nervous System |
Dr Derek Pheby, UK Dr M. Sant, Italy Dr J. Ironside, UK Prof. W.M. Molenaar, The Netherlands |
English |
Distributed in 1998 |
|
Leukaemias and Lymphomas |
Dr R. Otter, The Netherlands Dr A. Astudillo, Spain Professor P.M. Carli, France Dr A. Jack, UK Dr H. van Krieken, The Netherlands |
English |
|
|
Basis of Diagnosis |
Dr J. Smith, UK Dr R. Frost, UK Dr L. Teppo, Finland Dr O. Visser, The Netherlands |
English |
Distributed in 1999 |
|
Non-Melanoma Skin Cancers |
Dr T. Davies, UK Mrs M. Page, UK Dr J.W. Coebergh, The Netherlands |
English |
Distributed in 2000 |
|
Method of Detection in Relation to Screening |
Dr Leo Schouten, The Netherlands Dr Hannes Botha, UK Dr Eugenio Paci, Italy |
English |
Distributed in 2001 |
|
Confidentiality in Cancer registration |
Dr Hans Storm, Denmark Dr Eva Buiatti, Italy Dr Timo Hakulinen, Finland Dr Hartwig Ziegler, Germany |
English French |
Distributed in 2002 |
|
Condensed TNM for Coding the Extent of Disease |
Dr F. Berrino, Italy Dr C. Brown, UK Dr T. Möller, Sweden Dr L. Sobin, USA With: Dr J. Faivre, France |
English French |
Distributed in 2002 |