Marked differences in practice exist between cancer registries, for example, with respect to data sources, definitions and processing methods.To make cancer registry data comparable, which is one of the main aims of the Network, it is important that common rules and definitions are used. Working Groups have been established to examine specific topics, identified as potentially problematic. These expert working groups are constituted of 3-4 people, selected by the ENCR Steering Committee. Their task is to study the problem and make recommendations for the cancer registries.The following topics have already been discussed:


Working Groups
Topics Authors PDF link Date
Standard dataset
 
English
10 February 2005
Incidence Date
Dr Derek Pheby, UK
Dr Carmen Martínez, Spain
Dr Martine Roumagnac, France
Dr Leo Schouten, The Netherlands
English
French
German
Spanish
Distributed in 1995
Revised in 1997
Multiple Primaries
from ENCR:
Dr Paule-Marie Carli, France
Dr Isabel Izarzugaza, Spain
Dr Beata Koscianska, Poland
English
Distributed in 1995
Revised in 2000
Revised in 2004
Bladder Tumours
Dr Derek Pheby, UK
Dr Martine Sauvage, France
Dr Carmen Martínez, Spain
Dr Leo Schouten, The Netherlands
English
French
German
Spanish
Distributed in 1995
Tumours of the Brain and Central Nervous System
Dr Derek Pheby, UK
Dr M. Sant, Italy
Dr J. Ironside, UK
Prof. W.M. Molenaar, The Netherlands
English
Distributed in 1998
Leukaemias and Lymphomas
Dr R. Otter, The Netherlands
Dr A. Astudillo, Spain
Professor P.M. Carli, France
Dr A. Jack, UK
Dr H. van Krieken, The Netherlands
English

Basis of Diagnosis
Dr J. Smith, UK
Dr R. Frost, UK
Dr L. Teppo, Finland
Dr O. Visser, The Netherlands
English
Distributed in 1999
Non-Melanoma Skin Cancers
Dr T. Davies, UK
Mrs M. Page, UK
Dr J.W. Coebergh, The Netherlands
English
Distributed in 2000
Method of Detection in Relation to Screening
Dr Leo Schouten, The Netherlands
Dr Hannes Botha, UK
Dr Eugenio Paci, Italy
English
Distributed in 2001
Confidentiality in Cancer registration
Dr Hans Storm, Denmark
Dr Eva Buiatti, Italy
Dr Timo Hakulinen, Finland
Dr Hartwig Ziegler, Germany
English
French
Distributed in 2002
Condensed TNM for Coding the Extent of Disease
Dr F. Berrino, Italy
Dr C. Brown, UK
Dr T. Möller, Sweden
Dr L. Sobin, USA
With:
Dr J. Faivre, France
English
French
Distributed in 2002