An ENCR Working Group was established in 2003 to:

• review data items currently collected by ENCR cancer registries;
• establish what should be the “minimum dataset” collected by registries (this would be of significant importance for newly established cancer registries);
• identify which additional data items could and should be collected (e.g. in the light of possible extension of the registries’ activities in the field of evaluation of clinical care, linking data from the registries with the data from existing bio-banks, implementation of automated data collection procedures, etc.);
• establish a “standard dataset” (covering the minimum and other important optional data items) to be recommended to the ENCR members.